Saturday morning, I got a text from Aaron saying he had talked to Dr. Jetton and we for sure got to come home today. Woo-Hoo! I loaded up the other three kiddos and we headed back down to Iowa City.
Aaron and I both feel like it's good for the three kiddos to come and see the hospital. See where Blake has to stay. See what he has to go through, at least a little bit.
The plan is to slowly work Blake up at home to his 500 mL fill volume. We will be in daily contact with Dr. Jetton about Blake's numbers (dialysis and vitals). We also have to go down weekly so Jen, our nurse, can change Blake's dressings (the gauze/bandage type stuff) that are over his exit site (where the catheter comes out of his body).
We are so incredibly blessed to have such an awesome nephrology team down there. They like us. We like them. They trust us. We trust them. They welcome our questions and concerns. They ask our opinions. I will never forget in the NICU after Blake had started dialysis and they said, "We will end up being like your family." And they are.
I also have to say a big thank you to all of YOU! Thank you for the prayers, comments, meals for our family and everything else. You may not think it's a big deal, but it's a BIG DEAL to us. We couldn't get through this without our amazing support system!